Empowering Patients
Dear Patients and Families,
As medical oncologists, surgeons and researchers we are painfully aware that you, the Patients, face enormous hardships. Even in a limited stage of pancreatic cancer, implications and consequences of therapies are exhausting and burdensome. Information access, treatment options and trial participation can be daunting for all involved and this creates stress and additional uncertainty.
To significantly improve all of the above and treatment outcomes, the Trans-Atlantic Pancreatic Cancer Alliance (TAPCA) is also working to create the
and for a good reason: “There’s power in unity and there’s power in numbers…” (Dr. Martin Luther King Jr., Birmingham, Ala., May 1963)
TAPCA, through the creation of its Patients Registry, is geared to become the premier address for You and your Families to access broad support and receive help in finding the right treatment. Crucially, the Registry could facilitate your access to experimental clinical trials, including compassionate use (expanded access). But not just: the larger the assembling of clinical data from the Patients via the Patients Registry, the faster our labs will get to treatment breakthroughs. This is self evident in the digital and AI era.
Therefore TAPCA actively invites Patients and Family members to join and create a momentum that will hopefully changes lives for the better.
But not just:
You, the Patients, can play a pivotal role in solving another weighty roadblock that is currently challenging the very scientists who endeavour to preserve your lives. We invite You to visit our
and please do not hesitate to ask how You can help.